If you’re wondering about uBiome research and who can see or use your uBiome data, this page is for you.
We hope this clarifies any questions, but feel free to contact us if you have any queries or concerns. (These are uBiome’s current policies as of September 2013.)
uBiome obtained Institutional Review Board (IRB) approval from E&I Review Services in April 2013. An IRB is a group of scientific and community members who review research to facilitate protecting the welfare of research volunteers. The uBiome research study has received approval which allows us to conduct research, as well as to share and publish data from those who review and sign the Informed Consent form. Please review the document carefully as it discusses our research activities and governs how and what data may be used in scientific publications and shared with scientific collaborators.
You are not required to participate in the uBiome research study in order to obtain services from uBiome. Specifically, if you select “I DO NOT WISH TO PARTICIPATE AT THIS TIME” on the consent form, this will affect your ability to view correlations with other participants in the uBiome Dataset. Please see “Data Sharing” options below to learn more. Additionally, you can change your mind and consent to participate in our research at any time.
If you have already consented to participate in our research study and later change your mind, you may withdraw your consent by advising us of your decision. uBiome will prevent the requested information from being used in new uBiome research occurring after 30 days from receipt of your request. Any research on your data that has been performed or published prior to this date will not be reversed, undone, or withdrawn. Withdrawal of consent can be performed by contacting the Human Protections Administrator at privacy@uBiome.com.
(allowing you to see correlations with other users)
You have three options for data sharing and the choice is yours to make. You can share your data with:
If you have questions, please contact us at firstname.lastname@example.org.